Tuesday, July 19, 2011

13 years

13 years gone like 13 minutes...underwater.

Now that July 18th is over, I think it's time for a little reflection. The day marked the 13th anniversary of my diagnosis with type I diabetes, and to be honest, it was a lot more difficult than I thought it would be. It carried a lot of emotion that I hadn't been expecting, and the day in general hurt a lot more than it usually does.

Normally my "diabeteversaries" are happy occasions, days when I get treated to a nice dinner and sometimes even cake! The past few years have been really chill, because after a while it's not such a big deal anymore. I didn't mean for this one to even be a big deal. A Facebook status, a Tumblr post, a tweet or two. Not too much. But I guess it was my own fault that it became a bit bigger, because I talked about this one a lot. I mean, it is kind of interesting that my diabetes is a teenager now. But then I started making it a bigger deal than I even wanted it to be, so much that Claire even made me a cake (which was delicious and so awesome of her - thanks friend!).

It didn't help that my mom sent me this text: "Hey hun, it never ceases to amaze me how much courage you have shown in dealing with your medical conditions. I'm thinking of you on this 13th anniversary. Luv, mama." I overlooked it when I first got it, but when I went to reply later, it just hit me. I wouldn't be alive if it hadn't been for her.

It was a reminder of how fragile my life is, how easily I could lose control, how easily it could kill me. Maybe you don't know this (or maybe you do), but I've had four seizures, including two in my sleep. I've struggled with the temptations of diabulimia (which I'm sure you can find some information about on the Google machine - too much effort to go into it right now), it's been a major source of my depressive times, and I stopped caring for a long time during spring semester this year. No, wait. I didn't just stop caring; I let it take over, I let it get to me. For the first time, I felt defined by it.

Diabetes sucks. It really, really sucks. And I legitimately am sorry that I can't explain it very well to those of you who aren't diabetic. Unfortunately, you just can't know how it affects you unless you have it. I know you can see how it affects me, and you might feel like you get it, but it's just one of those things, you know? One of those things that is just impossible to fully understand until you're the one dealing with it. That's why camp has been so important to me - it's the one place where everyone really understands. I've never had the same connection with another person as I have with Lauren, my best friend from camp. I'm very lucky to have someone like her who understands and has had very similar life experiences.

I apologize for any time ever when I have not been very patient in talking with you about it. I know that you might just want to understand better, or you're curious about how things work. If I have lost my patience (or lose it in the future), please know it's not your fault. I know I have said before that it's my favorite thing to talk about, but if I'm being honest, it's really not. I'm not going to avoid talking about it or try to keep it a secret, but I only talk about it because it's something I can discuss for hours on end.

Another note - please, please spare me the diabetes jokes. They're a lot less funny when that's your reality. Also, they hurt more than you think they do.


I guess what I'm getting at here is that diabetes is a large part of my life. It affects me daily, to an extent you can't imagine. People tell me they couldn't imagine giving themselves shots every day, that I'm so strong and courageous, that they wouldn't be able to do it. I know they mean well, and I really appreciate the sentiment. But honestly, I would trade anything for it. I'm not brave, I'm just trying to stay alive. You might not think you'd be able to do it, but five injections a day is a lot better than dying so that's the option I choose.

So...I guess that kind of covers it. It's confusing and it's messy and it's anything but pleasant. It comes with other issues, it creates a lot of problems, and it's inconvenient. It creates days like this that end in tears, and it hurts - both externally and internally. And now, once again:

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